Note: Conquer Chiari is not affiliated with, nor endorses or recommends, any specific support group. Conquer Chiari does not have chapters and does not run any support groups. The following is provided for the convenience of the Chiari community. Conquer Chiari is not responsible for outdated information, it is up to the listing party to supply us with updated information or ask to be removed from the list.

If you run a support group, or are looking to start one, and would like to be listed, simply email the details to

Northeastern Region

Chiari of Connecticut
No specific meeting dates or times. Meetings are set up via email to members.

Lisa Savitt & Lisa Vassallo  |

Central New Jersey Chiari and Syringomyelia Support Group
Online Support

Brian Murphy  |

Western New York
Next Meeting: TBD

Agnes  | | Put "WNY Chiari" in subject line

Northeast Chiari Support Group
Albany Group: Every 3rd Saturday, 2 pm
Kingston Group: Meetings TBD
Pittsfield, MA Group: Meetings TBD
Canaan, CT Group: Meetings TBD

Jodie Churchill  |

Western Massachusetts Chiari Network Regional Support Meetings
Dates and times vary and are based upon member availability. Please contact us for more information.

For details, contact:
Don & Jen Tryon  |  413.203.1267
Visit:  Email:

Chiari People of PA Support Group
First Saturday of Every Month - 10:00 AM to 12 Noon

The Reading Hospital & Medical Center
6th Ave. & Spruce St.
West Reading, PA 19611
R Lobby Conference Room #14

Renee Tobias  |

Chiari & Syringomyelia Support of the Lehigh Valley
Meets: First Sunday of every month, 2-4pm

Banko Building at Lehigh Valley Hospital/Muhlenberg campus
Schoenersville Rd. in Bethlehem

Denise  |

Mid-Western Region

Northwest Indiana Chiari & Syringomyelia Support Group
Meetings: First Monday of Feb, April, June, Aug, Oct. & Dec. from 7-9pm at:

Center for Advanced Clinical Studies
Behind Methodist Hospital
200 East 89th Avenue
Merrillville, Indiana

Meribeth Swartz  |   219.462.7077  |

Southeastern Michigan Chiari Support Group
Have you or a loved one just been diagnosed with Chiari? Are you or a loved one considering Chiari decompression surgery? Would you like to talk to others that have already been decompressed or whose children have already been decompressed? The Southeastern Michigan Chiari Support group is comprised of many Chiari parents and adult Chiarians who struggle with this diagnosis and the way that it has affected their families. We have a page on Facebook and meet locally once a month.

Chiari Malformation is a diagnosis that not many people have heard about but we want you to know that there are people who are going through what you are currently. We would like to welcome you to our group online and our local monthly meetings.

Our belief is: “No One Challenges Chiari Alone”

Contact:  |   586.258.6742  |  Facebook: Michigan Chiari

Chiari of LaCrosse Support Group (Wisconsin)
Support Group for those with Chiari and their families. Opportunities to share stories, information, and most importantly support.

For details, contact:
Rachel Krueger at:
Facebook: Chiari of LaCrosse

Southern Region

Carolinas EDS, Chiari & More Support Group
Every 2nd Saturday  |  1:00pm – 4:00pm

Want to meet with others like you, listen and be heard in a supportive live group?  Bring, friends, family and caregivers. We host speakers at some meetings the 2nd hour . Special events will also be added, see schedules on links below.

Place for meet & Greet:
Julia's Cafe
1133 Wendover Road
Charlotte, NC 28211

Place for meets with Speaker:
Naomi Drenan Recreation Center
750 Beal Street
Charlotte, NC 28211

Contact:  |  704.449.3517
Website Calendar & info:

Chiari Friends Supporting Each Other
Meets: First Saturday of every month (time is emailed to members)

Mimi's Café
804 Providence Rd
Brandon, FL

Meeting takes place in the Private Room - Reservation under Brittany - Support Group

Brittany Riggs  |

Chiari Families Of The South Support Group
Meets: Last Saturday of every month, 12:00 - 2:00 PM

30-A Resorts (formally Criollas)
Scenic HWY 30-A
170 E County HWY 30-A
Grayton Beach, FL

Debbie Loomis-Earles  |  |   850.585.3622

Northern Kentucky/Southern Indiana
KARES 4 Chiari

For questions or to request a meeting, email:  |   Find us on Facebook!

Knoxville, Tennessee
2nd Thurs of the month 6-8pm

For details, contact:
Stephanie at:

Western Region

AZ Syringo & Chiari Support Group
2nd Saturday in January, April, July & Oct. (if it falls on a holiday weekend, we will meet the week before)
Special events may also be added.

11:00am – 1:00pm

St. Joseph's Hospital
Dining Room A (across from the cafeteria)
350 W. Thomas Rd.
Phoenix, AZ 85013

Call or email for next meeting date:
Dianna Contreras  |  602.973.4508
Kathie Hall  |  602.504.0883



Chiari Australia
Contact for local area support groups

For details, contact:
Kirstin Maltby at:  |