Note: Conquer Chiari is not affiliated with, nor endorses or recommends, any specific support group. Conquer Chiari does not have chapters and does not run any support groups. The following is provided for the convenience of the Chiari community. Conquer Chiari is not responsible for outdated information, it is up to the listing party to supply us with updated information or ask to be removed from the list.

If you run a support group, or are looking to start one, and would like to be listed, simply email the details to

Northeastern Region

Syracuse Chiarians (Upstate NY Chiari/Syringomyelia/EDS/POTS/MCAD Support)
We meet once a month for a face-to-face meeting with other members to share stories, support, and look for ways to spread awareness in our community! If you have any questions, please contact Kathryn.

Kathryn Argiro  |  202.277.3291 |  |  Facebook:

Chiarians of the DMV Group
First Meeting: TBD

Tiffany Thomas  |  202.277.3291 |

Chiari of Connecticut
No specific meeting dates or times. Meetings are set up via email to members.

Lisa Savitt & Lisa Vassallo  |

Central New Jersey Chiari and Syringomyelia Support Group
Online Support

Brian Murphy  |

Western New York
Next Meeting: TBD

Agnes  | | Put "WNY Chiari" in subject line

Northeast Chiari Support Group
Albany Group: Every 3rd Saturday, 2 pm
Kingston Group: Meetings TBD
Pittsfield, MA Group: Meetings TBD
Canaan, CT Group: Meetings TBD

Jodie Churchill  |

The Chiari Network | Western Massachusetts
Dates and times vary and are based upon member availability. Please contact us for more information.

Don Tryon
Visit: |  Facebook:

Chiari People of PA Support Group
First Saturday of Every Month - 10:00 AM to 12 Noon

The Reading Hospital & Medical Center
6th Ave. & Spruce St.
West Reading, PA 19611
R Lobby Conference Room #14

Renee Tobias  |

Chiari & Syringomyelia Support of the Lehigh Valley
Meets: First Sunday of every month, 2-4pm

Banko Building at Lehigh Valley Hospital/Muhlenberg campus
Schoenersville Rd. in Bethlehem

Denise  |

Mid-Western Region

Northwest Indiana Chiari & Syringomyelia Support Group
Meetings: First Monday of Feb, April, June, Aug, Oct. & Dec. from 7-9pm at:

Center for Advanced Clinical Studies
Behind Methodist Hospital
200 East 89th Avenue
Merrillville, Indiana

Meribeth Swartz  |   219.462.7077  |

Southeastern Michigan Chiari Support Group
Have you or a loved one just been diagnosed with Chiari? Are you or a loved one considering Chiari decompression surgery? Would you like to talk to others that have already been decompressed or whose children have already been decompressed? The Southeastern Michigan Chiari Support group is comprised of many Chiari parents and adult Chiarians who struggle with this diagnosis and the way that it has affected their families. We have a page on Facebook and meet locally once a month.

Chiari Malformation is a diagnosis that not many people have heard about but we want you to know that there are people who are going through what you are currently. We would like to welcome you to our group online and our local monthly meetings.

Our belief is: “No One Challenges Chiari Alone”

Contact:  |   586.258.6742  |  Facebook: Michigan Chiari

Chiari of LaCrosse Support Group (Wisconsin)
Support Group for those with Chiari and their families. Opportunities to share stories, information, and most importantly support.

For details, contact:
Rachel Krueger at:
Facebook: Chiari of LaCrosse

Southern Region

Carolinas EDS, Chiari & More Support Group

Want to meet with others like you, listen and be heard in a supportive live group?  Bring, friends, family and caregivers. Meet ups have been put on hold and we are seeking an additional host.

Place for meet & Greet:
Julia's Cafe
1133 Wendover Road
Charlotte, NC 28211

Contact:  |  704.449.3517  | Facebook Messenger is the best way to contact us
Website Calendar & info:

Chiari Families Of The South Support Group
Meets: Last Saturday of every month, 12:00 - 2:00 PM

30-A Resorts (formally Criollas)
Scenic HWY 30-A
170 E County HWY 30-A
Grayton Beach, FL

Debbie Loomis-Earles  |  |   850.585.3622

Knoxville, Tennessee
2nd Thurs of the month 6-8pm

For details, contact:
Stephanie at:

Western Region

AZ Syringo & Chiari Support Group:
Meets at St. Joseph's Hospital in Phoenix the 2nd Saturday of January, April, July and October from 11:00 am to 1:00 pm. Special Activities may be planned in the interim months.


Chiari Warriors of Little Rock:
Founder: LeNora B.-Thomas

Meetings held at Proximity Life Ministries bymonthly  |  Call Mon.-Fri. 9am – 6p @ 501-349-1837

For more info visit our website


Thunder Bay, Ontario, Canada
Online and in person support. Executive meetings, coffee nights and fun family events.

Email for more details:
Contact: Cassandra Elvish
Email:  |  Facebook: Chiari Thunder Bay

Chiari Australia
Contact for local area support groups

For details, contact:
Kirstin Maltby at:  |   Facebook: