Note: Conquer Chiari is not affiliated with, nor endorses or recommends, any specific support group. Conquer Chiari does not have chapters and does not run any support groups. The following is provided for the convenience of the Chiari community. Conquer Chiari is not responsible for outdated information, it is up to the listing party to supply us with updated information or ask to be removed from the list.
If you run a support group, or are looking to start one, and would like to be listed, simply email the details to mneff@conquerchiari.org.
Northeastern Region
Chiari of Connecticut
No specific meeting dates or times. Meetings are set up via email to members.
Contact:
Lisa Savitt & Lisa Vassallo | chiariofct@yahoo.com
Central New Jersey Chiari and Syringomyelia Support Group
Meets: Every 3rd Thursday of each month from 7-9PM
Riverview Medical Center
1 Riverview Plaza
Red Bank, NJ 07701
Administrative Conference Room (next to cafeteria)
Contact:
Brian Murphy | bmurphywalk@comcast.net
Western New York
Next Meeting: TBD
Contact:
Agnes | sweetpea324@verizon.net
| Put "WNY Chiari" in subject line
Northeast Chiari Support Group
Albany Group: Every 3rd Saturday, 2 pm
Kingston Group: Meetings TBD
Pittsfield, MA Group: Meetings TBD
Canaan, CT Group: Meetings TBD
Contact:
Jodie Churchill | northeastchiarisupport@hotmail.com
Western Massachusetts Chiari Network Regional Support Meetings
Dates and times vary and are based upon member availability. Please contact us for more information.
For details, contact:
Don & Jen Tryon | 413.203.1267
Visit: www.westernMAchiari.org
Email: westernMAchiari@gmail.com
Chiari People of PA Support Group
First Saturday of Every Month - 10:00 AM to 12 Noon
The Reading Hospital & Medical Center
6th Ave. & Spruce St.
West Reading, PA 19611
R Lobby Conference Room #14
Contact:
Renee Tobias | chrysanthemumsr4me@yahoo.com
Chiari & Syringomyelia Support of the Lehigh Valley
Meets: First Sunday of every month, 2-4pm
Banko Building at Lehigh Valley Hospital/Muhlenberg campus
Schoenersville Rd. in Bethlehem
Contact:
Denise | Greythndz@yahoo.com
Mid-Western Region
Northwest Indiana Chiari & Syringomyelia Support Group
Meetings: First Monday of Feb, April, June, Aug, Oct. & Dec. from 7-9pm at:
Center for Advanced Clinical Studies
Behind Methodist Hospital
200 East 89th Avenue
Merrillville, Indiana
Contact:
Meribeth Swartz | 219.462.7077 | mmswartz.chiari@comcast.net
Southeastern Michigan Chiari Support Group
Have you or a loved one just been diagnosed with Chiari? Are you or a loved one considering Chiari decompression surgery? Would you like to talk to others that have already been decompressed or whose children have already been decompressed? The Southeastern Michigan Chiari Support group is comprised of many Chiari parents and adult Chiarians who struggle with this diagnosis and the way that it has affected their families. We have a page on Facebook and meet locally once a month.
Chiari Malformation is a diagnosis that not many people have heard about but we want you to know that there are people who are going through what you are currently. We would like to welcome you to our group online and our local monthly meetings.
Our belief is: “No One Challenges Chiari Alone”
Contact:
Sschroeder6167@gmail.com |
586.258.6742 | Facebook: Michigan Chiari
Chiari Crusaders of Southwest Michigan
Meeting the second Saturday of every month
Meeting Time: 3-5pm
Location: Fred Russ Forest
20419-20999 Marcellus Hwy
Decatur, MI 49045
Contact:
Lisa | 269.317.5487 | lisa.friend@eimotech.com
Tonya | 269.635.2564 | momand2kidswithchiari@yahoo.com
Chiari of LaCrosse Support Group (Wisconsin)
Support Group for those with Chiari and their families. Opportunities to share stories, information, and most importantly support.
For details, contact:
Rachel Krueger at:
chiarioflacrosse@yahoo.com
Facebook: Chiari of LaCrosse
Southern Region
Carolinas EDS, Chiari & More Support Group
Every 2nd Saturday | 1:00pm –
4:00pm
Want to meet with others like you, listen and be heard in a supportive live group? Bring, friends, family and caregivers.
We host speakers at some meetings the 2nd hour . Special events will also be added, see schedules on links below.
Julia's Cafe
1133 Wendover Road
Charlotte, NC 28211
Place for meets with Speaker:
Naomi Drenan Recreation Center
750 Beal Street
Charlotte, NC 28211
Contact: cgrampus@gmail.com | 704.449.3517
Website Calendar & info:
http://www.chronicpainpartners.com/carolinas-eds-chiari-support-group/meetings/
Chiari Friends Supporting Each Other
Meets: First Saturday of every month (time is emailed to members)
Mimi's Café
804 Providence Rd
Brandon, FL
Meeting takes place in the Private Room - Reservation
under Brittany - Support Group
Contact:
Brittany Riggs |
brittriggs06@yahoo.com
Chiari Families Of The South Support Group
Meets: Last Saturday of every month, 12:00 - 2:00 PM
30-A Resorts (formally Criollas)
Scenic HWY 30-A
170 E County HWY 30-A
Grayton Beach, FL
Contact:
Debbie Loomis-Earles |
graytongirl@gmail.com |
850.585.3622
Northern Kentucky/Southern Indiana
KARES 4 Chiari
Meets the 2nd Saturday of July, September, November, January, March, and May
Baptist Hospital East,
Education Center, Room 2G
For questions email:
KARES4Chiari@insightbb.com |
Find us on Facebook!
Knoxville, Tennessee
2nd Thurs of the month 6-8pm
For details, contact:
Stephanie at:
mattystephy7323@aim.com
Western Region
AZ Syringo & Chiari Support Group
3rd Thursday in January, April, July & Oct. Special events may also be added.
11:00am – 1:00pm
St. Joseph’s Outpatient Rehab
Conference Room
114 W. Thomas Rd. Phoenix, AZ 85013
1st Ave. & Thomas Rd. - NW Corner
Call or email for next meeting date:
Dianna Contreras | 602.973.4508
Kathie Hall | 602.504.0883
Email: arizonasyringochiari@gmail.com
International
Chiari Australia
Contact for local area support groups
For details, contact:
Kirstin Maltby at:
chiariaustralia@gmail.com |
Facebook:www.facebook.com/groups/120803784642160/