Note: Conquer Chiari is not affiliated with, nor endorses or recommends, any specific support group. Conquer Chiari does not have chapters and does not run any support groups. The following is provided for the convenience of the Chiari community. Conquer Chiari is not responsible for outdated information, it is up to the listing party to supply us with updated information or ask to be removed from the list.
If you run a support group, or are looking to start one, and would like to be listed, simply email the details to email@example.com.
Chiari of Connecticut
No specific meeting dates or times. Meetings are set up via email to members.
Lisa Savitt & Lisa Vassallo | firstname.lastname@example.org
Central New Jersey Chiari and Syringomyelia Support Group
Brian Murphy | email@example.com
Western New York
Next Meeting: TBD
Agnes | firstname.lastname@example.org | Put "WNY Chiari" in subject line
Northeast Chiari Support Group
Albany Group: Every 3rd Saturday, 2 pm
Kingston Group: Meetings TBD
Pittsfield, MA Group: Meetings TBD
Canaan, CT Group: Meetings TBD
Jodie Churchill | email@example.com
The Chiari Network | Western Massachusetts
Dates and times vary and are based upon member availability. Please contact us for more information.
Chiari People of PA Support Group
First Saturday of Every Month - 10:00 AM to 12 Noon
The Reading Hospital & Medical Center
6th Ave. & Spruce St.
West Reading, PA 19611
R Lobby Conference Room #14
Renee Tobias | firstname.lastname@example.org
Chiari & Syringomyelia Support of the Lehigh Valley
Meets: First Sunday of every month, 2-4pm
Banko Building at Lehigh Valley Hospital/Muhlenberg campus
Schoenersville Rd. in Bethlehem
Denise | Greythndz@yahoo.com
Northwest Indiana Chiari & Syringomyelia Support Group
Meetings: First Monday of Feb, April, June, Aug, Oct. & Dec. from 7-9pm at:
Center for Advanced Clinical Studies
Behind Methodist Hospital
200 East 89th Avenue
Meribeth Swartz | 219.462.7077 | email@example.com
Southeastern Michigan Chiari Support Group
Have you or a loved one just been diagnosed with Chiari? Are you or a loved one considering Chiari decompression surgery? Would you like to talk to others that have already been decompressed or whose children have already been decompressed? The Southeastern Michigan Chiari Support group is comprised of many Chiari parents and adult Chiarians who struggle with this diagnosis and the way that it has affected their families. We have a page on Facebook and meet locally once a month.
Chiari Malformation is a diagnosis that not many people have heard about but we want you to know that there are people who are going through what you are currently. We would like to welcome you to our group online and our local monthly meetings.
Our belief is: “No One Challenges Chiari Alone”
Chiari of LaCrosse Support Group (Wisconsin)
Support Group for those with Chiari and their families. Opportunities to share stories, information, and most importantly support.
Carolinas EDS, Chiari & More Support Group
Every 2nd Saturday | 1:00pm – 4:00pm
Want to meet with others like you, listen and be heard in a supportive live group? Bring, friends, family and caregivers. We host speakers at some meetings the 2nd hour . Special events will also be added, see schedules on links below.
1133 Wendover Road
Charlotte, NC 28211
Place for meets with Speaker:
Naomi Drenan Recreation Center
750 Beal Street
Charlotte, NC 28211
Contact: firstname.lastname@example.org | 704.449.3517
Website Calendar & info: http://www.chronicpainpartners.com/carolinas-eds-chiari-support-group/meetings/
Chiari Friends Supporting Each Other
Meets: First Saturday of every month (time is emailed to members)
804 Providence Rd
Meeting takes place in the Private Room - Reservation under Brittany - Support Group
Chiari Families Of The South Support Group
Meets: Last Saturday of every month, 12:00 - 2:00 PM
30-A Resorts (formally Criollas)
Scenic HWY 30-A
170 E County HWY 30-A
Grayton Beach, FL
Debbie Loomis-Earles | email@example.com | 850.585.3622
Northern Kentucky/Southern Indiana
KARES 4 Chiari
For questions or to request a meeting, email:
RCK@TWC.com | Find us on Facebook!
2nd Thurs of the month 6-8pm
For details, contact:
Stephanie at: firstname.lastname@example.org
AZ Syringo & Chiari Support Group
Meets at St.Joseph's Hospital during January, April, July and October with special activities planned in between.
For meeting dates and times, call or email:
Patty Fletcher | 623.317.2112
Kathie Hall | 623.570.5945
Thunder Bay, Ontario, Canada
Online and in person support. Executive meetings, coffee nights and fun family events.
Email for more details:
Contact: Cassandra Elvish
Email: email@example.com | Facebook: Chiari Thunder Bay
Contact for local area support groups