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September 30, 2008 --
September 20th 2008
changed my life and many others. Our walk was at Broward Campus South in
Pembroke Pines Florida. Our walkers walked around a pond with a fountain,
and many ducks. Atmosphere was so breath taken. We had over 50 people and
their tots. Total donations with sponsors around $2,300! There were purple
goody bags given to each walker. 10 Door prizes were given out after the
story's. We had donuts, chips, and Pizza that were all donated. I was so
proud of our community. After the walk we had some walkers who wanted to
share their stories. We had a fifteen year old in a wheelchair, she talked
about her experience with the doctors and all that she has been through. She
has Chiari but also has EDS. She was such a blessing. Her mom was so proud
of her. Forty three year old male, spoke about when he was first diagnosed
with Chiari - three years ago. Both still having problems. Ten year old's
mother spoke about what they had gone through with their son. All three had
decompression surgery.
You could feel the love from each and every one of our walkers. We shared
laughter and we also shared tears!! We shared e-mail addresses, phone
numbers and addresses. We had our pictures taken too. Look out because next
year will be bigger, better and higher goals! Thank you for letting me be
part of this great adventure, that we all face each and every day!
-- Jo Anne Hobbs

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