Hi Editor,

I just wanted you to know how much I enjoyed your website. It was so easy to read and understand the content, and sums up so many vital facts about Chiari. Thanks for educating people about the nerve damage involved too. That seems to be my curse after suffering with both CM and SM. As well as the argument about the success/failure of surgery, this is an area that needs more attention. Education about the disorder and the possibilities of permanent nerve damage are vital to quick and successful treatment.

Your awareness sheets are fantastic too - they are easy to read, but also include so much pertinent medical info. I like how you list the other diagnosis names for Chiari too. Pointing out the success rate and variable course after Chiari surgery is vital information to show doctors. It is wonderful that you also list the limitations of the disorder. No longer will we have to explain over and over to doctors again "why" we can't do so many things - just hand them the awareness sheet!

Thanks again for some good online writing!
Barbara