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Rick,
I watched the surgery on 3/16. It was incredible. I had decompression
surgery 9/20/04 by in Columbia, MO (Doctors' Name Withheld). They
told me all the details, etc. but seeing it made it seem more real.
My recovery has been awesome. I did everything [they] said to do and I am
back to playing with my 4 kids and doing household chores. I owe my new
pain-free life to [them]. They are absolutely the best to talk to and I
obviously trust them with my life.
Thanks,
Ryan A. Bresette
Olathe, KS (suburb of Kansas City, MO)
Rick,
What a tremendous opportunity to view this miracle occurring, and I viewed
it with a certain detachment, having had the procedures performed, 16 yrs.
ago. My husband, however, was spellbound, to see what had actually
occurred to me and how intense the surgery was.
I have a copy (learned a long time
ago, to obtain copies of the medical procedures performed) of the entire
history of "my chiari", from diagnosis to current follow -up, and over the
years had encouraged my husband to read the "story", but had no success,
so this was quite a gift to he and myself. Perhaps because of the amount
of time passed since my surgery, and the fortunate outcome of my recovery,
I was able to view the broadcast without a lot of emotion, plus knowing
how much more knowledge is available, in the time span since my surgery,
is mind blowing, to say the least. Again, I was so thrilled for the
opportunity to view this procedure, and am certain you will receive many
different interpretations of how the live cast presented to those of us,
"who were there"!
I have been a faithful reader,
since the Chiari-syringo News first appeared and gained so much insight
into the techinal world around us. Keep up the terrific job of
opening doors wwith information, as we search for the CURE!
A grateful reader,
Kathleen J. Hall
CM/SM/EDS/Neuropathic Pain, but ALIVE and kicking, at 63!
Hi!
I am writing because you asked what we thought of watching the surgery
online.
I thought it was very interesting; my son is nine and had the surgery one
month and one day prior to that webcast, so it was long enough after that
I was able to watch without panicking. :-)
It's herad to envision exactly what's being done and it was comforting to
see the doctor discuss the surgery and the future of that child as though
this really is something quite ordinary for these patients. I don't know
that I'd want my child on that table while the surgeon chatted with
cameramen, but as a spectator, I was riveted.
I've wondered how the child is doing. Do they offer any updates on the
progress or is it a one-glimpse deal?
Thanks!
Jane Foran
[Editor's Note: According
to Dr. Fletcher and the hospital, the surgery went very well, the patient
is doing great, and most of the symptoms have resolved.]
My daughter Ashley was diagnosed at
18 months. Her wonderful Doctor noticed a partial paralysis of her left
side. She was sent for an MRI and diagnosed. We worked to strenghten the
left side and watched her carefully. She is now a Sophmore almost a junior
at Georgia Tech. 19 years after her diagnosis we are amazed at the way she
has excelled. During her Junior and Senior year of High School she was a
cross-country runner. She was All-State. She still holds the record at New
Milford High School in Ct.. We don't know if Arnold-Chiari will rear it's
ugly head in the future but we feel blessed that Ashley has a wonderful
life so far. Web sites like yours are a blessing.
Susan Ryan
New Milford, CT
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