|
|
It's that time of
the year again. It's time to ask yourself what is Chiari &
Syringomyelia News worth, or more importantly, what is Conquering Chiari
worth to you?
We are kicking
off our end of year fund drive and it is critically important that everyone
think about what they can give so that we can continue, and move forward
with, our mission. I realize many of you are hard pressed for money,
but if you could dig deep and if everyone gave just a little bit, we could
make such a difference together.
Thousands and
thousands of patients, family members, friends, and medical professionals
use this website to learn about Chiari. Every person that visits is
one more person who is aware of what Chiari is. Here's why we need
money...
What We Provide
-
The ConquerChiari
website, a one-stop shop for information about Chiari, syringomyelia, and
related topics
-
Extensive patient
education materials, including an FAQ and Patient Education Sheets
-
On-line, monthly
newsletter, Chiari & Syringomyelia News, which includes Research Updates,
Personal Stories, Interviews, In-Depth Features, and more, all written in plain
English
-
Awareness sheets
which can easily be sent to friends or handed out at Health Fairs
-
An ear to listen, a
shoulder to lean on, and a place to get answers to critical questions
What We Are
Raising Money For
-
Expanded patient
education materials, including subject presentations which will present the
latest thinking on specific topics
-
A program to send the
Patient Education Sheets to every neurosurgeon and neurologist in the country so
that anyone diagnosed with Chiari and/or syringomyelia is given patient
focused information and a place to turn to
-
An on-line meeting
place for people to connect with each other and find support
-
The creation of a
doctor list
-
Publication of a
book, "A Patient's Guide To Chiari & Syringomyelia", so that patients have a
comprehensive guide to their condition
-
A grass-roots
volunteer awareness campaign, where the people raise their voice and make a
difference
-
A comprehensive
review of the existing research on Chiari, which will map out what is known,
what is not known, what is suspected, and how to move forward in a systematic
way
-
Exciting new
research, on a number of fronts, which will hopefully Conquer Chiari once and
for all.
I don't need to tell
you the heartbreaking stories, we all know them. The children who must
suffer through tests and surgery, the anguished parents, the adults who go years
being told they're crazy, the families who are stressed to the breaking point.
It's time to put an
end to this once and for all. It's time to get up and fight back.
It's time to Conquer Chiari.
If you agree, and
would like to make a tax-deductible donation, you can do so either on-line:
Donate
On-line
Or you can send your
donation, made out to C&S Patient Education Foundation, to:
C&S Patient Education
Foundation
Attn: Rick Labuda
320 Osprey Court
Wexford, PA 15090
THANK YOU! Your
donation will make a difference.
-- Rick Labuda
C & S Patient Education Foundation is a tax exempt
charitable organization governed by Section 501(c)(3) of the Internal
Revenue Code. Contributions to the Foundation are deductible as charitable
contributions on your federal income tax return, subject to various
limitations under the federal tax laws. For more information on your
individual tax situation, please consult a qualified tax attorney, CPA or
other tax advisor.
The official registration and financial information of the C&S Patient
Education Foundation may be obtained from the Pennsylvania Department of
State by calling toll-free, within Pennsylvania, 1-800-732-0999.
Registration does not imply endorsement.
Return To Table Of Contents |