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Ed. Note: This article first appeared in the June, 2004
issue of the journal Family Medicine and is reprinted with the gracious
permission of the Society of Teachers of Family Medicine.
During my third year as a family medicine resident, I was rather
dramatically introduced to a companion who had been with me constantly from
the day I was born. Though my companion went with me at all times to
all places, and had even communicated with me on a routine basis, I had been
totally unaware of his existence. Make no mistake; this companion was not my
friend. However, confronting him and learning from him are signal events in
my life, both personal and professional.
It is ironic that I met him when I did. I was becoming comfortable in my
roles as senior resident and physician. I thought pregnancy and new
motherhood taught me the special lessons I was intended to learn. The
associated physical and emotional experiences put a new perspective on
things for me as a physician. I thought I had met and overcome that
challenge well and thus believed that I could easily handle whatever came my
way. I was wrong.
Throughout my life, I had had headaches that I attributed to one benign
cause or another. This was, of course, after surviving the hypochondriasis
that all medical students endure in their medical career. Then, the
headaches began to get a little scary. First, they became more intense, then
they lasted longer, then I became presyncopal, then presyncopal when lifting
my 8-month old son. That was when I finally sought help.
I consulted one of my attendings. He looked at me thoughtfully and
said, “Let me think about this, Dora. I’ll do some reading and get
back to you in the morning.” He called me just a few short hours later
and said, “Dora, I think you need an MRI.” So, the next day I got the MRI
and, a few long hours later, I met my companion, Chiari.
I really didn’t consider him a companion at first. I was rather offended at
his presence, actually. I knew very little about him and was not
particularly interested in getting to know him. However, the situation
demanded that I become acquainted with him, so I did. My attending and my
husband, Jeff (also a third-year family medicine resident) had read about
him and had spoken with a neuroradiologist, neurologist, and neurosurgeon
before they came to introduce me to Chiari. They came prepared, and I am
grateful. After they broke the news to me and after my bawling unashamedly,
I regained composure and faced the road ahead. Medical texts, Internet Web
sites, and all the information that my husband and my attending gave me
provided plenty of food for thought, which was good. My appetite for
anything else was completely gone.
I was very angry at Chiari. He came to meet me at the start of a holiday
weekend, so I had to wait to seek help from specialists. I spent the whole
weekend ruminating over the negatives he was bringing to my life. With the
knowledge I had, I knew that getting rid of him would have to involve
surgery. I was angry at the restrictions he had placed on my life—I was not
to do anything that might provoke my headaches, which meant pretty much
everything, especially caring for my son. I hated it, and I hated him.
Thankfully, the holiday ended, and I was able to see the specialists. Chiari
accompanied me to see a neurologist who found deficits of which I was not
aware (NOT a good feeling), and, at her intercession, the neurosurgeon saw
me 2 days later. He found yet more deficits, and I was livid, not with
the surgeon, but with Chiari. Thanks to Chiari, I had to go through what the
surgeon classified as “the most painful surgery I do.” When my surgeon told
me he was surprised I wasn’t worse off than I was, and that the threat to my
life was serious, I resolved at that moment to take my companion by the
horns and kick him out of my life.
The next day, surgery rendered me too weak to do anything close to that. I
could not even turn my own head without manually reaching up and turning it
with both hands. This humbled me quickly; I realized Chiari was here to
stay. So, I let him. And by doing so, I opened myself to the lessons he had
for me to experience.
Recovery was an adventure in and of itself. I had to ask for help in doing
the simplest things. I had to rely on everyone to carry me through. I hated
asking for help but, when I reached out, help was everywhere to be found. My
husband, my family, my in-laws, the attendings and residents in the Quincy
Family Practice Residency Program, all the staff at the center— their
support was a large part of the reason I was able to do what I had to do. My
surgeon, his nurse practitioner, and the neurologist were always available
to answer my questions and to reassure me that things were going to get
better. Their continued presence throughout my recovery was also integral to
my progress.
Humility was by no means the only lesson I learned. I experienced firsthand
the extreme discomfort and restrictions of hospital support lines (IVs,
Foleys, arterial lines, and central lines). The agony of narcotic
withdrawal, the devastating effects of deconditioning, and the frustration
and despair of complicated recovery are experiences I will always remember.
The effect of my illness on my family was an aspect of medicine I had not
truly grasped before this ordeal.
Returning to residency was a slow and painstaking process. I am blessed to
be in a program with eternally patient and supportive fellow residents,
attendings, and staff. I am also blessed with a wonderful husband and
supportive family. I was only 6 weeks post-op, and returning to work was a
challenge like none I had faced. Because of them, it was a challenge I was
able to overcome.
As usual, my companion’s ugly face was still in the picture, little
reminders scattered through my days that he is always present. But, now I
see he is not so ugly. His countenance is less severe. His presence, though
prominent, is muted. His lessons are fresh and burned into my mind. I no
longer tire easily, my headaches are fewer and farther between, I can play
freely and comfortably with my son, and I can look to the future with a
smile on my face. Chiari was not a welcome companion and never my friend,
but the lessons I learned while getting to know him have made me, I hope, a
better physician.
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