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Rick,
Great edition of the newsletter this week. I especially liked the articles
on acupuncture and the view from Montana story. I'm particularly interested
in how often Chiari is misdiagnosed as a Psych disorder. Also appreciate the
fact that our subscriptions now extend the lifetime of the newsletter.
You're doing a great thing here. Keep up the good work.
Paula Schroeder
St. Paul, MN
Rick,
Very interesting issue! I've been using acupuncture for the last year for
neuropathic pain in my right palm. I go about every three weeks - it's
helped reduce the pain and I've reduced the amount of medication I had
been taking. The first 36 hours or so after a treatment, it actually feels
worse but then it feels better! My doctor is a Chinese trained MD with a
specialty in physiatry based at the University of North Carolina-Chapel
Hill. The University has a Program of Complementary and Integrative
Medicine within its Dept. of Physical Medicine & Rehabilitation (http://www.med.unc.edu/phyrehab/pim/) and
offers a wide range of alternative therapies.
On this journey with SM and Chiari, I've come to learn that
there is no single path that is right for every person. It's a complex
trip with many forks in the road that need exploring. I've also learned
more and more to trust my own instincts, and listen to what my body
is telling me. My doctor is my partner in pain management, but only I can
truly know what works or what doesn't.
Thanks for a great service. What a
bargain - $19.95 forever! Keep up the good work
and I look forward to the next issue.
Candace Morse
Thank you so much for the article about idiopathic sm. My 5 year old son
was diagnosed with this in April of this year and that article answered so
many questions for me. I am going to ask his doctor what he thinks about it.
I have been waiting to read something that has to do with him.
Thanks again,
Brandi McRight
Thank you so much for your empathy and knowledge of chiari-syringo. I am
51 and searched for the reasons for my poor health for 20 years. Being 50
before I had the chiari surgery, I suffer daily from nerve damage and just
wanting to live. Thanks for caring and God bless you
Charlotte Mobley
My brother was diagnosed with syringomyelia in 1947, the year before I
was born. He was sent to the National in London to be treated. He was
eight years old. My brother passed away when he was 52, he fell out of his
wheelchair onto his forehead, became completely paralised and died a week
later. I was his carer for the last twelve years of his life as my
mother was too old to care for him herself. In all that time I can honestly
say that he had a wonderful sense of humour and an exceptional brain. We had
a very close relationship as brother and sister and I miss him terribly but
I always have the wonderful memories of the time we spent together and the
laughs we had while I was caring for him.
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