For Parents

A positive parent-school relationship is critical when a child has a disability or health condition like Chiari. A collaborative approach, working with school staff to promote your child’s success, is in your child’s best interest. As a parent, your positive involvement at school and your relationship with the school affects your child’s cognitive, emotional, and behavioral performance at school. "Taking Chiari to School - A Parent's Guide" is intended to provide you with information to assist you as you navigate the school environment and help your child with Chiari succeed.

Taking Chiari to School - A Parent's Guide

Prepared by Suzanne Oró, RN, MSN-ed.
This guide is not intended to provide health or legal advice.
Copyright 2012 C&S Patient Education Foundation


For School Nurses

"Taking Chiari to School - A Primer for School Nurses" is for school nurses who may be responsible for the care of a child with the Chiari malformation type one (CM1). Chiari malformation type one (CM1), although not a common condition, may present challenges for the child in the school setting. Even though most children with CM1 are generally able to attend school with their peers, some require nursing care and accommodations in the school setting to promote their safety and success. Your familiarity with the CM1 diagnosis, symptoms, treatments, and available resources will reinforce parent efforts and provide continuity of care for the child with CM1 in school.

Taking Chiari to School - A Primer for School Nurses

Prepared by Suzanne Oró, RN, MSN-ed.
This guide is not intended to provide health or legal advice.
Copyright 2012 C&S Patient Education Foundation


Supplemental Forms & Educational Material

Chiari Malformation Type 1 (CM1) Individual Health Plan (IHP) Template
A fillable, printable template for the Individual Health Plan that may be used for a student with the Chiari Malformation Type 1 (CM1) in the school setting.
CM1 IHP Template

*NEW* National Center for Learning Disabilities "IEP Headquarters"
As parents, teachers, and students, you talk about Individualized Education Programs, or IEPs, all the time. Why, then, do they still cause so much confusion, or overwhelm—as our community indicated in a recent survey. IEP Headquarters intends to change that.
IEP Headquarters

Categories of Disability Under IDEA
In depth supplemental information on IDEA, discussed in our Parent and Nurse's Guides.  View and download the pdf file from the National Dissemination Center for Children with Disabilities (NICHCY) website:
Categories of Disability Under IDEA