Conquer Chiari:  A Patient's Guide

(320 pages, $19.95)

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Ray's Corner

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Contents Under Pressure:  One Man's Triumph Over Chiari


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Who Is Ray D'Alonzo?

Conquer Chiari:

Chiari Malformation (Arnold-Chiari)  is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.      

About Chiari:  A Quick Overview    Symptoms    Diagnosis         
Treatment    FAQ  

News & Events:

The CCWAA11 Raised Over $395,000 For Research!! Thank you to the 5800+ walkers who joined us on this amazing day. See the Pics and Videos

Conquer Chiari Selected for Jimmie Johnson's Helmet of Hope

Help Spread Awareness, visit the Conquer Chiari store

Conquer Pediatric Chiari Through Research Hope Awareness Campaign

More Info:

Handouts/Brochure

Professional Research Conferences (video web archives):
     Conference 2010
     Conference 2008
     Conference 2007                

Tips On Finding A Neurosurgeon

Meet Other Chiari People In The Meeting Place

Support Groups

More Education Materials

Conquer Pediatric Chiari

Organize A Fundraiser

Conquer Chiari Annual Report 2010


 

Chiari & Syringomyelia News
Volume 8, Issue 3 - September, 2011
(Printable PDF)

Latest Research: 

* Study Finds Most Non-Surgical Chiari Cases In Children Do Not Progress Over Medium Term
* Complications May Be Related To Graft - Sealant Combination
* New Scoring System Proposed For Chiari
* Japanese Survey of Syringomyelia Prevalence
* Some Chiari Cases Develop Acute Symptoms

Community News:
* New Chiari Center Opens In Ohio

More C&S News ( Full Table of Contents)

Newsletter Archives (Over 300 Articles):
  By Subject
  By Date
  Personal Stories
  Special Topics
  Interviews
  Case Studies

Stay on top of the latest Chiari research through our Email List:

Quick Facts About Chiari Malformation:

• Affects more than 300,000 people in the US; 30% of children born with spina bifida are also born with a Chiari Malformation.

• Causes a wide ranging, diverse set of symptoms. Research has shown that 95% of patients experience at least 5 symptoms.

• Diagnosed using combination of MRI, neurological exam, physician’s judgment, and other tests; patients often go 5 or more years before being properly diagnosed.

• A study of over 300 Chiari Malformation patients found that 57% had at one time been told by a doctor they were suffering from a mental or emotional problem.

• Many patients undergo serious brain surgery in an attempt to stop symptoms from progressing.

• Research has shown that surgery can improve symptoms for about 80% of patients, but fails about 20% of the time.

• Chiari can place a tremendous physical, mental, emotional, and economic strain on patients and their families.

The C&S Patient Education Foundation, known informally as Conquer Chiari, is a 501(c)(3) public charity dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research.  The Conquer Chiari website is the single most comprehensive source of information available about Chiari Malformation and related topics. 

Tax deductible donations can be made here.   Tax ID#:  20-0904691.

Give Us A Call:  724-940-0116

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Disclaimer:  This publication is intended for informational purposes only and may or may not apply to you.  The editor and publisher are not doctors and are not engaged in providing medical advice.   Always consult a qualified professional for medical care.  This publication does not endorse any doctors, procedures, or products.

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