Chiari & Syringomyelia News  

A  bi-monthly, on-line publication delivering the latest research updates, news, and information.

March, 2009
Volume 7, Number 2
[Printable Version]

Newsletter Archives (Over 300 Articles):
  By Date
  Research Articles
  Personal Stories
  Special Topics
  Interviews
  Case Studies

Featured Articles:

Study Explores The Natural History Of Chiari

Chiari Malformation & Sleep Apnea

Talking About Chiari With Others

Wide Range Of Chiari Malformation Symptoms

C&S News:

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 About The Editor

Chiari Malformation (Arnold-Chiari)  is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.             

!!!News & Events!!!

Conquer Chiari Walk Across America To Be Held On September 26th, 2009!!  Are you interested in being a site organizer?
   Site Organizer Application
   Site Organizer Guide

Conquer Chiari To Add Support Group Page To Website

Conquer Chiari & Column of Hope Call For Research Proposals 2009 - $250,000 is available for funding

Conquer Chiari News:

Organize A Fundraiser

Conquer Chiari On Facebook

About Chiari:

A Quick Overview   

FAQ

Research Articles (Symptoms, Surgery, Theories, Pain, etc.)                        

Handouts/Brochure

Chiari Conference 2008

Chiari Conference 2007                

Meet Other Chiari People In The Meeting Place

More Education Materials

Organize A Fundraiser

Conquer Chiari:  A Patient's Guide

Order (320 pages, $19.95)

Contents Under Pressure:  One Man's Triumph Over Chiari

Order (187 pages, $13.00)

Quick Facts About Chiari Malformation:

• Affects more than 300,000 people in the US; 30% of children born with spina bifida are also born with a Chiari Malformation.

• Causes a wide ranging, diverse set of symptoms. Research has shown that 95% of patients experience at least 5 symptoms.

• Diagnosed using combination of MRI, neurological exam, physician’s judgment, and other tests; patients often
  go 5 or more years before being properly diagnosed.

• A study of over 300 Chiari Malformation patients found
  that 57% had at one time been told by a doctor they were suffering from a mental or emotional problem.

• Many patients undergo serious brain surgery in an attempt to stop symptoms from progressing.

• Research has shown that surgery can improve symptoms for about 80% of patients, but fails about 20% of the time.

• Chiari can place a tremendous physical, mental, emotional, and economic strain on patients and their families.

The C&S Patient Education Foundation, known informally as Conquer Chiari, is a 501(c)(3) public charity dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research.  The Conquer Chiari website is the single most comprehensive source of information available about Chiari Malformation, syringomyelia, and related topics.  Tax deductible donations can be made here.   Tax ID#:  20-0904691.

CONTACT US:  director@conquerchiari.org, 724-940-0116

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