Patient Awareness Sheets

What They Are


Awareness Sheets are one-page, high-level overviews of each condition. They are meant to give you - the reader - something that can be easily emailed, or printed out and handed to, family members, friends, co-workers, bosses, teachers, principals, dentists, etc. to give them a better idea of what a person with CM/SM is going through.



Chiari Awareness Sheet
(click image for PDF)

Chiari Awareness Sheet
Syringomyelia Awareness Sheet
(Click image for PDF)

Syringomyelia Awareness Sheet


The Importance of Awareness


One of the major obstacles that Chiari and syringomyelia patients face is that it seems like no one has heard of the conditions. Once thought to be rare, MRI's have dramatically increased estimates of the number of people with Chiari (~300,000 in the US). This lack of awareness creates an additional burden for patients as they try to explain to family members, friends, employers, etc. what they are going through.

In addition, the lack of general awareness has translated into a lack of research dollars from the US government. Diseases which affect about the same number of people receive millions of dollars of federal support each and every year.

It's time to raise our voices, raise our profile, and make people aware.