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I love all of your information! It is very helpful to me because it educates
me more than the doctors and PA's that I have seen so far...Thank you so
much for all that you do. Keep up the good work.
Very educational and to the point in language most
people could understand without being a brain surgeon.
Outstanding presentation. My daughter was
just diagnosed with Chiari 1. This helped me to understand much better.
Thank you.
Very useful, I am an OR Nurse, I knew nothing
about this syndrome and wanted more info prior to performing the case. thank
you. Info was very clear and precise.
Great info for rehab nurse taking care of a Chiari
patient. Thanks!!
This presentation was very helpful to me. My
sister was just diagnosed with this and is considering surgery. I now feel
much better informed on her condition. I will recommend this website to her
if she hasn't already found it.
Thanks for the presentation. It was very clear and
generally in layman's terms. My wife was just made aware of her diagnosis
today. We have not had face-time with the doctor yet, so finding information
is a nice bit of a stress reliever.
I have been reading the newsletter and watching it
get better and better with each issue. I have Type I Chiari with symptoms
that have waxed and waned over a three year period. The newsletter gives me
a good perspective on the various ways this condition manifests and how it
can be managed. I also work part time on the Human Body Gallery at the
Science Museum of Minnesota and have copied articles from the recent edition
to share with the staff there. Keep up the great work.
I very much appreciated your editorial "Bridging
the Patient-Doctor Communication Gap." As both a provider and a patient I
found it very enlightening. I would like to share this article with my
colleagues.
Finally an informative piece on my illness. Thank
you for sharing such great info!
Thank you very much!! This makes it easier to
understand this "not able to understand" condition.
Very informative. I just became aware of ACM via
an acquaintance diagnosed w/it. I will share this info w/her. She is
currently refusing any surgery. Thank you for the clarity in deliverance of
currently known info and for making it available to us!!!
Thank You for the information you supply through
the website, through my daily research of CM/SM I happened into your site
and am very glad that I did. I look forward to every months issue.
This was very informative! Thanks!!!
I really enjoyed this website. Very helpful.
Excellent presentation. Relative just diagnosed -
will forward to her.
Very informative and easy to understand. Thank
you.
Thank you so much for your information. I knew
nothing and now know much!
Thank you! You seem to include everything
and more important used large font and backgrounds that made it easy on the
eyes! Easy to follow, and free!!! Thanks so much!
Finally an informative piece on my illness. Thank
you for sharing such great info!
Very simple to operate, easy to understand, with one of our family just
diagnosed, it is very helpful in understanding the condition.
Very clear and concise. Thanks for putting this
website up.
Excellent overview for me. I just got a diagnosis
today of Chiari Type I with no syrinx. The overview was very helpful and to
the point. I will be reading more to determine the likely hood of needing
surgery in the absence of a syrinx. Thank you. |