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Ongoing and Planned Fundraisers:
Chiari Walk In Kansas Big Success
Thanks to the efforts of Sharon Coldiron, more than 25 people braved the
morning cold in Wichita and raised more than $1500 for Chiari research!
The best part is that local Chiari people got to meet each other and are
already planning next year's walk.
Shelby's Art Shelby is one
girl with Chiari who has decided to fight back for her and her sister. With the help of her
mom, Tina, she is using her artistic talents to raise money for Chiari
research. Shelby is selling her artwork and helping to Conquer Chiari!
You can read more about her efforts, and see her art, at:
http://ahealthytouch.com/chiari.htm
Chiari
Gets A New Face On Facebook
Facebook is a popular social networking site and thanks to Casey Gray,
Conquer Chiari has a new face on Facebook.
Recently Facebook introduced Facebook causes as part of their platform.
According to Facebook, "Facebook platform presents an unprecedented
opportunity to engage our generation, most of whom are on Facebook, in
seizing the future and making a difference in the world around us. Our
generation cares deeply, but the current system has alienated us. Causes on
Facebook provides the tools so that any Facebook user can leverage their
network of real friends to affect positive change."
Casey, who recently had surgery, immediately thought of Chiari and put
together a page for Conquer Chiari. In addition to raising awareness,
the page is a great tool for donations and Conquer Chiari has already
received its first check!
To visit the Conquer Chiari Facebook page
(note you have to sign up for Facebook):
Conquer Chiari Facebook
Chiari Research Walk In Ohio
Raises Money And Awareness
On June 24th, Chiari patients, family members and supporters gathered in
Ohio for the First Annual Chiari Walk - Ohio. The event was a big
success with a strong turn-out and over $2200 was raised for research.
Families came from near and far to raise their voices, raise awareness and
raise money to Conquer Chiari.
Special thanks to the organizers, Anna
Sherwood and Cristy Workman, and of course a big thanks to all those who
participated by walking and raising money.
Way to go everyone!! Hopefully this will
be the first of many successful events to come.
Contents Under Pressure
Ray D'Alonzo documented his Chiari experience
in an inspiring book,
Contents Under Pressure,
with 100% of royalties going to the Conquer Chiari campaign. Already,
Ray's book has raised thousands of dollars.
Photojournalist
Raises Money Through His Work
George Weir, a
professional photojournalist, has come up with an ingenious way to get the general
public involved in the Conquer Chiari effort. In his standard
contract for weddings, George offers his clients a significant discount on his
usual fee in exchange for a minimum donation to Conquer Chiari (or another
charity he is involved with). George's efforts have just begun and already
he has raised thousands of dollars this way.
Past Fundraisers:
Conquer For Kaya
The first annual Conquer For Kaya Golf
Tournament was held in August, 2006. Organized by Debbie Culver in
honor of her granddaughter, Kaya, the event was a huge success and raised
nearly $20,000 for Chiari research. Debbie is planning an even bigger
event for 2007.
CARE Walkathon
To support her teenage twins, Michele Louria
organized the Chiari Awareness & Research Enhancement Walkathon, held in
Michigan. The first of what will become an annual event was held in
October, 2006 and raised $1,500 for Chiari research.
Marathoners Run For Research And Awareness
In the fall of 2006, Ray D'Alonzo, Annie
Sharich, and Adele Morgan each ran a different marathon to raise money for
Chiari research and awareness in general. They not only had a great
time, but raised over $1,000 for research! You can read their stories
here.
4H Group Raises Washes Cars For Chiari
On July 7th, the Dark County, Ohio 4H Canine
Capers joined the battle against Chiari by holding a car wash at the
Grennville Kmart. In addition to raising money, each person who got
their car washed received a Conquer Chiari brochure.
The event was held in honor of Matthew, a
Chiarian who was decompressed in January of this year. Matthew's
cousin, Taelor (who is a member of the 4H group, came up with the idea of a
organizing a Chiari Car Wash for their community service project.
Congratulations to the Dark County, 4H Canine
Capers for a job well done!!
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