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October 29, 2009 --

The following information is provided as a courtesy to the Chiari community.  Conquer Chiari has not funded and is not involved with this research study:

Genetics of Chiari Type I Malformation

The Duke Center for Human Genetics is actively recruiting families who have TWO OR MORE family members with Chiari type I malformations, with or without syringomyelia. These family members must be related to each other by blood, and BOTH must be willing to participate. At the current time, we are not able to enroll families in which the only diagnosed members are a parent and child.  If the family meets these criteria and wants to receive study participation information, please contact the study coordinator at 1-877-825-1694 or chiari@chg.duhs.duke.edu

IRB #Pro00011231

 

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