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• Creation of the Conquer Chiari website, the single most comprehensive source of information available on Chiari and related topics.  The site contains hundreds of articles, expert interview, personal stories, patient handouts, videos and more.  Overall, the site has been visited more than 1,000,000 times and more than 7,000,000 pages of information have been viewed.
• Creation of a social networking site for the Chiari community with more than 3,000 registered users.
• In 2007, organized a Research Symposium which was attended by more than 40 top neurosurgeons, radiologists, engineers, and other professionals.  The proceedings were captured in a unique video web archive and made freely available to the public.
• In 2008, Conquer Chiari was invited by the National Institute of Neurological Disorders and Stroke (NINDS) to organize an even larger Research Conference with the goal of establishing the current state of knowledge and developing research recommendations.  The conference was again well attended by the top neurosurgeons and researchers in the world.
• In 2010, organized the third Conquer Chiari Research Conference, which has become the primary scientific meeting for Chiari researchers to present and discuss research.
• To date, Conquer Chiari has funded more than $660,000 in research projects.  Current research projects include developing novel imaging techniques to provide an objective diagnosis of Chiari, identifying which genes are active during a critical stage of development when it is thought that the Chiari Malformation occurs, and assessing the cognitive effects of Chiari, and creating a Patient Database to collect demographic and health related information on Chiari patients to be made available to Chiari researchers.  Conquer Chiari intends to fund an additional $300,000 of projects in 2011.
• Published “Conquer Chiari:  A Patient’s Guide”, a unique book which provides a comprehensive, science based overview of Chiari written in an easy to understand format, from the patient’s point of view.
• In 2009, launched a separate website, www.conquerpediatricchiari.org, to focus on children affected by Chiari.
• Launched the Conquer Chiari Walk Across America.  This annual fundraising and awareness event is a series of walks held across the country on the same day.  In 2010, the walk involved more than 4,000 people and raised over $330,000 for research.
• In 2009, a lobbying effort succeeded in getting the US Congress to include language in the National Institutes of Health Appropriations Bill directing them to focus on Chiari research.

Stay tuned, because we're just getting started!