What Is Chiari & Syringomyelia News

What Is Chiari & Syringomyelia News?

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The C&S Patient Education Foundation (Learn More), a 501(c)(3) non-profit organization dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research, is proud to announce the creation of an on-line newsletter dedicated to those affected by Chiari (Arnold Chiari Malformation) and Syringomyelia.

These serious neurological conditions have a profound impact on those they affect; impacting not only the people who have the condition, but their family, friends, and loved ones as well. Everyone who is touched by these conditions is thrown into a confusing, overwhelming world of neurosurgeons, MRI's, and medical jargon.

Whether they are newly diagnosed, or have had the condition for years, everyone faces a near constant array of questions and decisions: Should I have surgery? What surgical technique will be used and why? What doctor should I see? Is he running the right tests? Will my symptoms go away? What will my quality of life be? How will this affect my family? Unfortunately, there are no easy answers. Doctors are beginning to question the basic definition of a malformation, there are numerous theories on syrinx formation, and there is wide variation among surgical techniques.

Despite the many questions, our understanding of these conditions is growing and evolving rapidly. Researchers from around the world are focused on understanding and developing the best treatments possible. With their hard work, new ideas and theories are constantly emerging to be debated, tested, and hopefully move us one step further along the path of knowledge.

Chiari & Syringomyelia News, through a combination of research updates, in-depth analyses, and interviews, provides the latest information, in an easy to understand format. Stay on top of the latest developments that affect our community and arm yourself with the knowledge you need to make intelligent, informed decisions.

What do you think? Help us make Chiari & Syringomyelia News the best publication possible; give us your comments, criticisms, and suggestions...

Disclaimer: This publication is intended for informational purposes only and may or may not apply to you. The editor and publisher are not doctors and are not engaged in providing medical advice. Always consult a qualified professional for medical care. This publication does not endorse any doctors, procedures, or products.